I had the privilege of speaking with Katrece Nolan, a breast cancer survivor from Northern Virginia. We had such a lovely and long conversation that I ended up producing this episode in two parts. Today we dive into Katrece’s compelling story with inflammatory breast cancer (IBC). Diagnosed in her late 30s, Katrece's story began with a simple observation of asymmetry in her breasts, which led her to seek medical attention. Despite initial challenges in getting timely appointments, her persistence paid off when she was diagnosed with IBC, a rare and aggressive form of breast cancer.Katrece detailed the rigorous treatment process, which included chemotherapy, surgery, and radiation, emphasizing the importance of having knowledgeable doctors and advocating for oneself. She also highlighted the emotional and logistical challenges of managing a cancer diagnosis while raising three young children, and the critical role of community and family support.Katrece's story is a powerful reminder of the importance of self-advocacy, the need for specialized knowledge in treating rare cancers. In part II (EPS 423), we celebrate Katrece’s survivorship of 11+ years and what survivorship and surveillance look like for those diagnosed with breast cancer. SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In today's episode, we delve into the world of PET scans and other imaging modalities crucial for accurate diagnosis and staging of breast cancer. We are joined by two incredible guests: Dr. Kiser, the Medical Director of Molecular Imaging for Carilion Clinic, and Pam Kohl, a patient advocate living with metastatic breast cancer.Dr. Kiser provides an in-depth explanation of PET scans, particularly focusing on FDG and FES (also known as Cerianna) PET scans. FDG-PET scans use radioactive glucose to highlight cancerous tissues, while FES-PET scans target estrogen receptors, making them highly specific for ER-positive breast cancer. Dr. Kiser emphasizes the revolutionary impact of these imaging techniques in both diagnostics and therapeutics.Pam shares her personal experience with breast cancer, highlighting the importance of advocating for oneself. Diagnosed with early-stage breast cancer in 2009, Pam experienced a recurrence in 2017, which led to a stage 4 metastatic diagnosis. Her story underscores the critical role of PET scans in detecting metastasis early and informing effective treatment plans. Pam's experience with FES-PET scans has been particularly transformative, allowing her medical team to tailor her treatment precisely to her cancer's characteristics.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In this episode of Breast Cancer Conversations, we delve into the critical topic of nuclear medicine and its role in breast cancer diagnosis and treatment. As a breast cancer survivor and advocate, I understand the anxiety that comes with scans involving radioactive tracers. Today, we aim to demystify this process and highlight its importance.I am joined by Dr. Kaiser and Pam Kohl, who provide insights from both medical and patient advocate perspectives. We discuss the safety and precautions associated with nuclear medicine tests, particularly focusing on the issue of extravasation—when the radioactive material leaks into surrounding tissues instead of staying in the vein.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In this episode we are joined by Dr. Katherine Benedict, a Clinical Psychologist at Stanford University, along with patient advocates Delta James and Roxana Guerrera, to discuss the topic of dating, sex, and love after a breast cancer diagnosis. We highlight the importance of normalizing the challenges and complexities of intimacy post-diagnosis. Tune in for insightful advice and empowering stories from survivors, those living with MBC, and patient advocates.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In this episode of Breast Cancer Conversations, we had the pleasure of speaking with Dr. Laura James, a naturopathic oncologist based in Washington State. Dr. James provided a wealth of information about the role of naturopathic oncology in breast cancer care, emphasizing the importance of integrative medicine. She clarified the distinctions between integrative, complementary, and alternative care, and highlighted the collaborative approach she takes with conventional medical teams to support patients through their cancer journey.We discussed the critical role of the "four cornerstones" of health—diet, exercise, sleep, and stress management—in supporting overall well-being and reducing the risk of cancer recurrence.We also delved into the emotional and psychological aspects of a breast cancer diagnosis, particularly the societal pressures and internalized guilt that many women face. Dr. James emphasized the need for setting boundaries and practicing real self-care, which she defines as self-preservation; it is not selfishness. Throughout our conversation, Dr. James highlighted the importance of building a comprehensive care team and the challenges of integrating naturopathic oncology into conventional cancer care. She shared her experiences in developing relationships with conventional doctors and the ongoing effort to gain acceptance for integrative approaches.This episode is a must-listen for anyone looking to understand the holistic approach to breast cancer care and the importance of addressing both the physical and emotional aspects of the disease. Dr. James's expertise and compassionate approach offer valuable insights for patients, caregivers, and healthcare providers alike.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In today's episode, host, Laura Carfang speaks with breast cancer survivor Brianna Rickertsen. Brianna was diagnosed with invasive ductal carcinoma in July 2020 at age 35. She underwent chemotherapy, surgery, radiation, and additional treatments due to a HER2 positive tumor. Brianna discovered she has a BRCA2 mutation, leading to further preventive measures, including ovary removal.Pre-Diagnosis, Brianna was an active person, engaging in activities like yoga, cycling, hiking, and running.  During Treatment Brianna used the Peloton app daily for mental health and physical activity, adapting her routine based on her energy levels and treatment schedule. Post-Treatment, Brianna emphasizes the importance of movement in managing fatigue and overall well-being, advocating for small, consistent efforts.Timestamps: [00:03:23] Breast cancer diagnosis in 30s.[00:09:44] Bone health and treatment decisions.[00:11:45] Discussing fertility options during treatment.[00:14:17] Genetic testing and surprises.[00:19:01] Coping through daily exercise.[00:23:41] Exercise in cancer treatment.[00:25:18] The power of walking during treatment.[00:29:15] Exercise dosing in cancer treatment.[00:34:24] Strength training for beginners.[00:38:06] Lymphedema and strength training.[00:41:13] Weightlifting and health journey.[00:45:03] Finding joy in exercise.[00:45:53] Reframing approach to daily activities.Support the Show.

Meet the SBC Early Stage Leadership Team: Meghan Staskal-BradtJ, ulie Cottrill, Carol Collins, Meghan Aycock, Pooja Jain & & Marcee RaffelThe team is a powerhouse of volunteers who have been instrumental in driving various projects and initiatives at survivingbreastcancer.org.Today's episode provides an opportunity for you to meet these volunteers and hear their personal stories of being diagnosed with breast cancer and advice for those newly diagnosed or dealing with survivorship.From finding lumps to navigating treatments, weight gain, and post-treatment challenges, our panelists share candid insights into life after a breast cancer diagnosis. Join us as we discuss the highs and lows of survivorship and the importance of self-care.Support the Show.

In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Jessica Balidad, a remarkable woman who has turned her personal experience with breast cancer into a powerful advocacy platform. Jessica, a five-year survivor of stage 2B invasive ductal carcinoma, shared her journey from diagnosis to becoming a passionate advocate for women's health.Jessica's story is both inspiring and educational. She discovered her cancer through a self-breast exam, a practice she had been diligent about since having a benign tumor removed in college. Despite her family history of breast cancer, she faced challenges in getting her concerns taken seriously by medical professionals, highlighting the importance of self-advocacy and awareness.Jessica's experience led her to create the Feel For Your Life app, a free mobile application designed to educate women on how to perform self-breast exams, track changes and set reminders for regular checks. The app also includes a new AI feature, Breastfriend AI, which helps users understand their medical reports and prepare questions for their doctors, making the often overwhelming medical information more accessible and less intimidating.We also discussed the broader implications of breast cancer awareness and education, particularly among younger populations. Jessica has been instrumental in legislative efforts to include self-exam education in high school curriculums in Tennessee, aiming to empower the next generation with the knowledge to take control of their health.Additionally, Jessica shared insights into navigating the complexities of medical insurance, offering practical advice on how to handle claim rejections and advocate for necessary treatments.This episode is a testament to the power of turning personal pain into a purpose-driven mission. Jessica's work through Feel For Your Life is making a significant impact, providing essential tools and support for those affected by breast cancer.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

Listening to your body is crucial, especially during times of illness or recovery. In today's episode, Michelle Sandlin talks about her unexpected diagnosis despite leading a very healthy lifestyle.  We discuss the significant role of genetic testing in Michelle's life, revealing her BRCA1 gene mutation and its implications not only for her but also for her family members, including her daughter who chose to take preventive measures. Michelle shares how writing helped her process her experience, manage her emotions, and connect with others. Her book, Cancer Don't Care,  aims to inspire and support others going through similar challenges and can be found on  Amazon, available in hardback, paperback, and Kindle editions. For more inspiring stories, stay tuned to Breast Cancer Conversations.Note: The information shared in this podcast is based on personal experiences and is not intended as medical advice. Always consult with your healthcare provider for medical guidance.Thank you for tuning in, and don't forget to subscribe to our newsletter at survivingbreastcancer.org/subscribe for more updates and inspiring stories. Keep thriving, and see you in the next episode!Topics Covered:[00:10:36] Being diagnosed with cancer.[00:13:55] Exercise and cancer benefits.[00:19:24] Meditation during cancer journey.[00:22:41] Genetic testing and family impact.[00:29:02] Making decisions about surgeries.[00:32:22] Michelle's journey with writing.[00:39:29] Choosing positivity during adversity.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

The heart of today's episode is the poetry readings from our community members. Each poet shared their personal experiene with breast cancer, touching on themes of struggle, resilience, and hope. From Brookshire McDonald's reflections on the growth of our community to Farhana's poignant farewell to her breasts, each piece brings unique insights and emotions.Joely from New Jersey shared her experience compiling an anthology of breast cancer-related poetry, emphasizing the therapeutic power of writing. We also heard from Cindy, whose fierce poem likened the battle with cancer to a warrior's fight and Evelina Buendia gives voice to The Warrior Cry, to name a few. The episode concluded with a collaborative poem created by our community, symbolizing our collective strength and support for each other. It was a powerful reminder of the support network that survivingbreastcancer.org strives to provide.Thank you for joining us for this moving episode. Poets:Brookshire McDonald - Beyond the DreamFarahana Kassam, Alas, My Boobs AdieuJoely  Serino, Hearts in the SandCindy Farmer, To the AmazonsPooja Jain, Sleepless NightsEvelina Johnson Buendia, In the MiddleSue  Krejci, SurvivorshipLaura Carfang, The Night TrainGloria Shoon, Reflection After MeditationLourdes Heras, Solitude and SupportWilliam Laferriere, DesperationEvelina Jonshon Buendia, The Warrior CryJoely  Serino, Cancer During CovidElisa Herrares, FlowingWilliam Laferriere, Waiting for HerculesA tribute to Ilene Kaminski,  Memory of HopeElle  Veitch, SistersAll, Group Poem CreationAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In today's episode, we tackle a highly requested topic: navigating work while living with MBC. We explore the complexities of managing a career, discussing when to work, when to consider disability, and how to maintain health insurance and benefits amidst a metastatic diagnosis.Our guest, Abigail Johnston, leads our MBC webinar series and has assembled an incredible panel of women who share their firsthand experiences of working with MBCOur panelists include:Holly, from Portland, who was diagnosed de novo metastatic and continues to work a physically demanding job at the Humane Society.Lisa Hahn, from Alexandria, Virginia, who works for Pew Charitable Trust and has been living with MBC since 2019.Dawn McDaniel, a psychologist who founded Mystical Energies and was diagnosed with MBC in April 2023.Wendy Casper, a psychologist and professor at the University of Texas at Arlington, who has been researching work-life balance and cancer diagnosis communication.The panelists share their unique stories, from disclosing their diagnosis to requesting reasonable accommodations under the Americans with Disabilities Act. They also discuss the importance of self-care and the challenges of balancing work with treatment schedules.We highlight resources like cancerandcareers.org and triagecancer.org, which provide invaluable guidance for those navigating cancer in the workplace. These organizations offer state-specific resources and federal protections under the ADA.Each journey is unique.  No one is alone in this experience. We encourage our listeners to reach out with topics or to share their stories on our show.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Awareness and resources for safety are crucial when it comes to addressing issues of domestic violence, especially in the context of breast cancer.  In today's episode we share personal experiences, warning signs, and resources for those who may be facing this difficult situation.Lourdes Heras, a breast cancer survivor, shares her experience of dealing with both a health issue and a violent intimate partner. She highlighted the importance of recognizing and addressing domestic violence, especially within the Hispanic community where discussions about such topics may be considered taboo or embarrassing. We are joined by Cami inforzato who is the Women's Program Coordinator for the Domestic Abuse Intervention Programs.  The discussion highlights the parallels between the private nature of breast cancer and domestic violence, both of which may not be immediately visible to others. It is essential to create a safe and supportive environment where survivors feel empowered to seek help and access resources for their safety.Topics Covered:00:07:02 - The Power and Control Wheel Explained00:10:25 - The Impact of Domestic Violence on Women and Children00:13:30 - Lourdes's Journey to Seeking Help00:18:49 - The Importance of Women Supporting Each Other00:19:33 - The Equality Wheel: Signs of a Healthy Relationship00:21:37 - Lourdes Reflects on Her Growth and EmpowermentResources:Hotline: 800.799. SAFE (7233). Power and Control Wheel: https://www.thehotline.org/identify-abuse/power-and-control/ Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Lauren shared her story, starting from the unsettling discovery of a lump during a routine yoga practice to her diagnosis of stage 3, triple-positive breast cancer at the young age of 29. She recounted the initial disbelief, the urgency of starting treatment, and the life-altering decisions she faced, including fertility preservation through IVF before commencing chemotherapy. 00:03:59 - Lauren's Breast Cancer Diagnosis Story00:08:48 - Family History and Genetic Testing00:11:12 - Sharing Diagnosis with Family and Friends00:14:21 - Treatment and Fertility Decisions00:19:48 - Journey to Motherhood00:25:08 - Children and Surrogacy Experience00:33:44 - Starting Liv and Let and the Giv ShoppeResources mentioned in this episode: https://www.livandlet.com/https://www.givshoppe.com/Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Tune in to this episode of Breast Cancer Conversations as Shannon and Erin share their personal experiences with the Signatara test. Shannon, living with oligometastatic breast cancer, takes a holistic approach to her treatment plan, while Erin, with early-stage triple-negative breast cancer, offers insights from a different perspective.Personalized blood tests for cancer, such as the Signatera are revolutionizing the way we monitor and treat cancer. These tests offer a non-invasive and more accurate way to detect circulating tumor cells in the bloodstream, allowing for early detection of cancer recurrence or progression.The Signatera test, developed by Natera, uses a combination of blood samples and tissue samples to create a specialized test that can detect circulating tumor cells that may not be detectable through traditional testing methods. By analyzing the levels of these circulating tumor cells in the bloodstream, the test can provide valuable information about the presence of residual cancer cells and the risk of recurrence or progression.Discover how Signatara is used to determine treatment plans and explore a variety of perspectives on managing breast cancer.[00:07:12] Holistic cancer treatment approaches.[00:14:06] Breast cancer treatment options.[00:18:13] Pathology complete response.[00:23:19] Circulating tumor cells detection.[00:25:52] Genetic makeup of cancer cells.[00:30:36] Exploring treatment options.[00:37:31] Moments of advocacy and empowerment.[00:44:33] Customizing Cancer Treatments.[00:49:17] Early cancer detection methods.[00:50:52] Misconceptions about cancer stages.+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Dawn shares her journey from diagnosis to traveling the world doing cat sitting after caring for her mother. Their conversation touches on major milestones, personal experiences, and the impact of travel on Dawn's life post-treatment. Tune in for an inspiring story of resilience and adventure.00:02:08 - Travel Stories Post-Diagnosis00:08:42 - Seeking a Second Opinion and Surgical Biopsy00:12:34 - Dawn's Experience with Aromatase Inhibitors00:19:02 - The Importance of Second Opinions and Patient Choice00:21:24 - Dawn's Radiation Experience and Naturopathic Protocols00:24:06 - The Importance of Self-Care and Lifestyle Adjustments00:31:49 - The Three Stages of Recovery: Survive, Transform, Soar00:34:41 - The Role of Self-Care in the Healing Process00:40:12 - Embracing Travel as a Form of Emotional Release+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/Laura and Will: https://www.instagram.com/laura_and_will/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In this episode, Emily Parks, a patient advocate and professional living with a chronic illness, shares her personal journey with medical PTSD, starting from her diagnosis at birth with a gene mutation affecting her GI system. She talks about the lack of mental health support in her medical treatment and how she learned to manage her condition and advocate for herself within the healthcare system.We touch on the importance of recognizing medical PTSD, understanding its triggers, and learning how to communicate effectively with healthcare providers to ensure better care and support. Emily emphasizes the power of language in expressing our experiences and the need for literature that accurately reflects the trauma associated with chronic illness and medical treatment.We cover practical tips for managing medical PTSD, such as setting boundaries with healthcare providers, seeking therapy, and finding coping mechanisms that work for you. We discuss the importance of building a respectful relationship with your medical team and how to advocate for your needs in a healthcare setting. Welcome to the Conversation! 00:03:57 - Emily Parks' Personal Medical Journey00:08:41 - Defining Medical PTSD00:10:10 - Examples of Medical PTSD00:14:28 - The Impact of Medical PTSD on Cancer Patients00:18:12 - The Term "Non-Compliance" in Medical Notes00:19:51 - Medical Gaslighting Explained00:29:27 - Building a Trusting Relationship with Healthcare Providers00:31:09 - The Importance of Language in Expressing Medical Trauma00:33:06 - Practical Steps for Accessing Care with Medical PTSD00:34:11 - Setting Boundaries with Healthcare Teams00:37:10 - Coping Mechanisms and Self-Advocacy00:44:55 - Resources and Articles on Medical PTSD00:47:38 - The Importance of Patient-Centered Care00:51:07 - The Power Dynamic Between Patients and Providers00:52:31 - Strategies for Communicating with Healthcare Providers+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/Laura: https://www.instagram.com/laura_and_will/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In this episode, we had the pleasure of introducing our incredible Metastatic Breast Cancer (MBC) Leadership Team. It was a heartwarming session where we delved into the personal journeys of our team members, each sharing their unique experiences with breast cancer.Our conversation was guided by the ever-inspiring Abigail Johnston, a board member and a dear friend, who led us through the stories of our amazing guests. We heard from Katie, Sheila, Claudia, Melanie, Amy, and in spirit, Kathleen, who couldn't join us due to the side effects of MBC. Each story was a testament to the strength and resilience of those living with a metastatic diagnosis.We discussed the importance of clinical trials, the power of education, and the need for community support. Our team also highlighted the resources and programs that Surviving Breast Cancer offers, including our webinar series, support groups, and the wealth of information available on our website.The episode was not just about sharing stories; it was about building a family. We emphasized the significance of intimacy in our conversations and creating a space where we can share the most personal aspects of our lives with openness and trust.Topics Covered: 00:03:33 - The Role of the MBC Leadership Team00:06:02 - Personal Stories: Katie's Journey with MBC00:09:08 - Sheila's Experience and Advocacy in the Hispanic Community00:12:25 - Claudia's Experience with Metastatic Triple Negative Breast Cancer00:17:01 - Melanie's Transition from Early Stage to Metastatic Disease00:23:05 - Amy's Diagnosis and Advocacy Work00:29:22 - Honoring Kathleen's Contributions and Initiatives00:32:01 - Abigail's Clinical Trial Experience and Advocacy00:44:38 - Overcoming Cultural Barriers in the Hispanic Community00:47:36 - The Significance of Education in Cancer Treatment++++++++++++++++++++Website:SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancerorg: https://www.instagram.com/survivingbreastcancerorg/Laura and Will: https://www.instagram.com/laura_and_will/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Today's episode of Breast Cancer Conversations features Rachel Burns, an incredible musician, singer, songwriter, and founder of the nonprofit Cancer Culture. Celebrating 10 years since her initial diagnosis, Rachel dives into her identity beyond cancer, highlighting her roles as a mom, daughter, and advocate. As a musician, Rachel describes the healing power of music and how it helped her process her emotions and experiences with cancer. Rachel's songs, which blend various genres, serve as a source of hope and inspiration for others facing similar challenges. Welcome to the ConversationRache's story is a powerful reminder that while cancer can change our lives, it doesn't have to define them. We can find strength in our passions, support in our communities, and hope in our continued efforts to live fulfilling lives.Topics Covered: 00:02:17 - Living with Breast Cancer Post-Diagnosis00:05:35 - Identity and Breast Cancer00:12:36 - Mental Health and Cancer Diagnosis00:16:02 - Lifestyle and Diet Before Cancer00:24:29 - Finding Flow State Through Music00:28:20 - The Healing Power of Art and Music00:33:59 - Involvement with Cancer Culture+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Today, we have the pleasure of speaking with Jacquie Carter Angel, a remarkable woman who has not only survived non-Hodgkin's lymphoma as a teenager but is now living with metastatic triple-negative breast cancer (MBC).Jacquie shares her incredible journey with us, from being told she wouldn't live past her early 20s to becoming a mother, a wife, and a successful entrepreneur in the beauty industry. Despite her initial diagnosis of HER2-positive breast cancer and later, the more challenging triple-negative metastatic disease, Jacquie's spirit remains unbroken.In our conversation, 's emphasized the importance of self-examination, noting that both times she discovered her breast cancer, it was through accidental self-discovery rather than routine mammograms. She highlighted the need for women, regardless of age, to be vigilant about their breast health.Jacquie also opens up about the difficult decision of whether to disclose her cancer diagnosis to colleagues at work. She reflected on her first experience with breast cancer, where she prioritized her career over her health, and contrasted it with her current approach, which puts her well-being first! Welcome to the Conversation. 00:02:05 - Jacquie's Personal Story and Cancer Experiences00:09:06 - Deciding Whether to Share Diagnosis at Work00:18:28 - Discovering the Recurrence of Cancer00:23:06 - Experience on Trodelvy00:24:01 - Understanding Triple Negative Breast Cancer00:29:19 - Finding Positivity and New Interests During Cancer00:31:28 - The Role of Caregivers and Family Support00:32:38 - Advice for Those Recently Diagnosed+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Today, we had the pleasure of having Melanie Sisk on the show to demystify the complex world of emerging endocrine therapies, often referred to as the "alphabet soup" of treatments. Melanie provided clarity on the different classes of drugs and how they interact with tumors, particularly focusing on those that target estrogen receptors.We discussed:SERMs (Selective Estrogen Receptor Modulators): These drugs, like tamoxifen, block the growth of cancer cells by competing with estrogen receptors.SERDs (Selective Estrogen Receptor Down Regulators/Degraders): Drugs like Fluvestrant work by degrading estrogen receptors.SERANs (Complete Estrogen Receptor Antagonists): These block both pathways of estrogen, offering a complete blockade.PROTACs: A newer class that targets specific proteins, such as the estrogen receptor, to inhibit cancer growth.+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show